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Thursday, January 22, 2015

vent alert

Sure society is severely mentally deficient in understanding but the biggest ones that deserve that sound track of an old fashioned record being scratched is most of the "experts". One mother was told that anymore children after her first and only child was dxed so would the rest. 
Many many times I have heard cases of parents being told that if their child has not started talking by four just basically give up ( even a latest study dated March 2013 says that 75% of children not speaking by 4 will still speak). http://m.pediatrics.aappublications.org/content/131/4/e1128
Parents are constantly getting told that their child's IQ is under normal level, which is just not true in many cases.......just because they can't properly measure a child who does not see any reason to take the test and has difficulty with verbal information.
Parents get told there is something wrong with their child, just because they learn differently does not mean there is something " wrong" with them. It is called a disorder when it is only a different order.   An apple I hear is a good computer, but it works differently to my windows laptop.  The processing is done on a different operating system (uses a different base language) they are also wired differently.  If I want to write a program on hubby's apple computer I would have to learn a whole new language. I have had to learn a lot and fast for my son and I still stuff up, but to reach him I had to and continue to learn his language. ("Experts " don't get this, they want to teach my son by forcing him to learn our language out of thin air......)
Ok vent over, thanks for listening.

Monday, January 19, 2015

If you don't try

When Edward meets someone new or is in a new environment he is for all intents and purposes non verbal, and shows no skill people only see his amazing side because it is at home, he is used to being photographed and filmed right from day 1, he now will echo things in public like when I say "say hi Lisa" and he will more than likely say it. That is all. So people who see Edward in the mall are seeing a child that seems more and more less able, but as you all can see in my videos that is not what we see at home at all.

You have not seen him non verbal or screaming on the floor in the mall or when his EIT turned up and he had a massive meltdown and just seconds away from bashing the back of his head on the rebounder and screaming at the kindy doors because he wanted to be in the sand pit not inside with the others at mat time (even though he did not have to sit with them), you have not seen the dirty looks I get from other parents because my son has bitten theirs, I get dirty looks when an adult asks Edward a question and he has completely dismissed it. Everything in public suggests that Edward is "mentally deficient". Edward is just that brilliant book that will change your life and your perspective on everything in you as long as you can only not snob the strange looking dust cover.

I say all this not to put my son down but for all those parents who say, " oh but your son is not like my son", "your son is high functioning, mine is not that capable", " your son is not really moderate, more like mild ", " my child can't do that".
My reply is you are very right that your child can't do that.....if you don't try. There is no harm in trying with your child, you might just find out how capable your child actually is. You might give up on the poor me trip that you are on and see some potential and a brighter future.

Or I may be wrong and what have you lost?????

Saturday, January 10, 2015

My Russian tutor - Edwards Russian tutorial to date from 27th Dec to 10th Jan 2015

3.5 years old can barely say sentences, now has in his repertoire, English, French, Spanish, Japanese, Russian and starting to learn Arabic.....so I guess next on the teach mummy list is Arabic.

Wednesday, January 07, 2015

What if he is wrong???

https://adiaryofamom.wordpress.com/2015/01/06/but-what-if-hes-wrong/

Tuesday, January 06, 2015

Autism ASD - Dear friends and family (what I would have liked to have heard just after diagnosis)

To the parents, family and friends just starting out on this journey.

My sad moments were when firstly I thought my son was going to get an aspie diagnosis then the doctor said "Edward is on the spectrum and he is not mild", also he said even if Asperger's was still being diagnosed Edward would still be Autistic because of his lack of verbal and non verbal communication and his lack of comprehension. The reason why I fell apart is the thoughts that flooded my mind were of my darling baby boy being institutionalised and having to rely on minimum wage carers who if having a bad day could without consequence take it out on my son....... that was what I grieved for my baby boy. The first thing I did was educate myself as fast as I possibly could on how to make sure the outcome for my son would not be that horror movie playing again and again in my mind. ........ I have learnt so much since those days and those horror movies no longer run through my head of such a negative future, too much relies on my positive thoughts for his future. I have never grieved the son I was "mean't to have" I have always only wanted my child/ children to be happy. And even though Edward is delayed in some "normal milestones", he is far exceeding his potential in "atypical milestones". And as I have said to another child recently when the child said "at his age, I could swing myself", "Edward does other things better". This is when you learn that there is nothing to grieve, when you can accept your child for what makes them amazing. Big big hugs.