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Tuesday, September 16, 2014

Why I call my son autistic and not with autism ---part 2

Why I call my son autistic and not with autism ---part 2

Depends on whether you think the word is negative or an asset.  I consider that lovely little guy is autistic and not "with autism", because I feel it is his super power, it makes him different and stand out and I am very proud of my son and his abilities and they come from him being my adorable, blond, blue eyed, funny very intelligent, autistic Edward. :-). All describing words, all positive words.

Would you call an Olympic pole jumper, inability to be an Olympic heavy weight weight lifter and start saying " person with Olympic pole jumping disorder"?

Names will always be around while language exists in this society, cleft palate children used to be considered slow, left handers used to be considered the devils hand maidens, children used to be seen and not heard, but society changed as it must.  I have faith in society that they can also make the evolutionary leap in believing autistic people are valued members of society, just like artists, doctors, computer programmers, left handers, deaf people......................

Sunday, September 14, 2014

People on the spectrum have emotions - News Alert!!!!

Oh my god they are just working this out now? Our kids have tons of empathy they just don't know how to respond to it, they need to learn the socially acceptable way to do that which is a social mine field of danger when they get it wrong.

Sometimes emotion can be so strong I can't look at people and can't talk to them, those cases for me are extremely rare and very short (worst i think was 30 mins in my mid thirties but it helps we with insight about more severe ASD.)

http://seventhvoice.wordpress.com/2013/11/16/new-study-finds-that-individuals-with-aspergers-syndrome-dont-lack-empathy-in-fact-if-anything-they-empathize-too-much/

Oh PS our kids are no aliens, they have higher anxiety levels, and you would too if you could not find the right words to convey your thoughts and feelings and everyone miss understood you.

Friday, August 01, 2014

These are people with Autism

These are people with Autism -

Carly Fleishmann (going to university this year, still non verbal) http://youtu.be/vNZVV4Ciccg , http://carlysvoice.com/home/aboutcarly/
"I am not able to talk out of my mouth, however I have found another way to communicate by spelling on my computer. (and yes that is me typing on the computer by myself)
I used to think I was the only kid with autism who communicates by spelling but last year I met a group of kids that communicate the same way. In fact some are even faster at typing then I am."
"That was when I realized several things. I was not retarded at all, but I was very handicapped by my lack of ability to speak. People assume that if you cannot speak, then you must be retarded. Most people who are trained in special education know nothing about autism, although they think they are the autism experts. "
""Always look inside other people's experience in order to gain another perspective," Dillan said on stage. For years, Dillan's ideas used to be trapped inside his head. Today they're spilling out with the aid of his tablet computer."
Jake Willmann (non verbal)  - http://youtu.be/q4pU9980Hm0
"

Autistic child is also math genius"


Rylan Kirksey (non verbal) - At 2 years, adding and spelling

Dashiell (minimally verbal)
"“I wish people didn’t make fun of me. They don’t see me. They only see my disability. If they only knew I am an intelligent man who is saddened by people who tease me. I hope my story will help others understand that autism is not a disease you might catch but a condition that gives me the ability to see things that others don’t."

Edward Warburton (nonverbal - partially verbal in public depending on stress, getting more verbal at home every day) - At 3 years and 1 month can read, spell and write words, loves planets, numbers and letters. http://youtu.be/sildWUJETlg
Dr Stephen Shore (verbal from 4) - http://youtu.be/VZlApgtt5Fs
"Stephen Shore, doctoral student and individual with autism, discusses his personal history and experiences with ASD. He states how important it is to him to give parents hope. Mr. Shore explains how he feels autism is a difference to be worked with as opposed to as enemy to be defeated."

Dr Temple Grandin (verbal from 4) - http://youtu.be/UKhg68QJlo0
"Temple Grandin, diagnosed with autism as a child, talks about how her mind works -- sharing her ability to "think in pictures," which helps her solve problems that neurotypical brains might miss. She makes the case that the world needs people on the autism "
Jacob Barnett - they can't test his intelligence because he keeps getting ALL of the answers right, started uni at 8 years of age. Not just any subject Quantum Physics.
"

Jacob (Jake) Barnett "Math and Science Prodigy" on 60 Minutes"


Monday, July 28, 2014

Helped my Autistic boy - I don't see why it won't help most if not all children

Edward is going really well and in 5 months if we can get him nappy trained I don't see a need for a carer at kindy.  He is intelligent, I believe most if not all children on the spectrum are.  I have ideas and dreams of helping other children, but I totally understand mums wanting to keep their children close.  If you feel that the things you are trying don't feel right or don't sound right, and you want to know what I did.  I mean 1 or 2 weeks just to try something that may just work because it did for Edward just might work for other children.

Connect to them first - copy their behaviour
List their behaviour for reference -

Spin
Jump
Rock
Flap
Tippie toe
Staring at sparkly things
Swinging

Sing and talk to your child while swinging them.

I like ( whatever they like)
"I like spinning spinning spinning, I like spinning how about you?"

copy their behaviour and sing simple songs that have movements if possible.
Why song? Because the autistic brain is more receptive to it than speech -
http://brain.oxfordjournals.org/content/135/3/961/F2.large.jpg

Head, shoulders knees and toes - http://youtu.be/Ozzo7GQLoAE
I love you (barney song) - http://youtu.be/IYBHt9j_IF4
Twinkle twinkle little star - http://youtu.be/i6GDkELs9UY
Row row your boat - http://youtu.be/DuXbEolKGwM
Jump    - https://www.youtube.com/watch?v=kcQJDpj5TSY
Indian cry (hand on and off mouth)

Talk touching child’s head with your head, during sleep even better
or talk to your child with their hand on your face while talking to them
every chance to use spectrum analyser use it (app can be found on both ipad - cost associated with ipad app and on the android apps is free)

Son-rise    - copy the child, sing along (make a song to go with the motion)
Showing that you like what the child likes, you are connecting yourself with the like factor in your child’s brain.  “Do what your child with autism is doing and you will connect more deeply with them. When they flap, you flap, when they rock, you rock, when they line up objects, you line up objects.”

Simon-Baron Cohen's idea - connecting emotions and faces with the like factor in your child’s brain using the video called “The transporters”  about $100  free sample is here http://youtu.be/8kU_CQGWBsU

Kristine Barnett’s idea of “muchness” - adding and giving more of what the child enjoys in slightly different ways (an excellent idea for connecting those neurons).  Her book is called “The Spark”  - more on Kristine http://youtu.be/yBPiY0bKoks
My idea -  every chance to use spectrum analyser (gives visual feedback of verbal self) and use mirrors (gives visual feedback of self and self awareness) http://suzannejeffares.blogspot.co.nz/2014/07/well-i-am-stumped.html

Find videos that have songs on the childs favourite subject try to find them with songs and with captions.