Thursday, October 02, 2014

Autism and low intelligence and over diagnosing

I think the ASD and other supposed brain "dysfunction" difference in thinking is what can make our children look at the world differently and help make it a better place. I can't change how I think. Temple Grandin (severe side of the asd spectrum), John Nash (nobel prize winner with schizophrenia), Jacob Bennett (ASD regressed from talking to nothing in his 2's), Raun Kaufman (diagnosed with classic autism), Carly Fleischman ( writer of 2 books, presently going to mainstream university and still non verbal, considered retarded, behaviour calmed amazingly as soon as she was able to 'voice' her feelings etc), Dr John Hall (diagnosed severely autistic and retarded), parents now are trying harder with their ASD kids instead of giving up on them and many are starting to see that experts were wrong when they said that their child would never be able to do this or that. Many experts have been extremely incorrect about the ASD child's intellect. Children originally diagnosed severe and retarded have made massive strides into the mild side of the spectrum with people constantly saying "well maybe they weren't in the first place". This is my experience over the 1.3 years. So if kids are going from severe to mild or even staying severe and writing books with the help of technology where is this so called wall of misdiagnosis?

Tuesday, September 16, 2014

Why I call my son autistic and not with autism ---part 2

Why I call my son autistic and not with autism ---part 2

Depends on whether you think the word is negative or an asset. I consider that lovely little guy is autistic and not "with autism", because I feel it is his super power, it makes him different and stand out and I am very proud of my son and his abilities and they come from him being my adorable, blond, blue eyed, funny very intelligent, autistic Edward. :-). All describing words, all positive words.

Would you call an Olympic pole jumper, inability to be an Olympic heavy weight weight lifter and start saying " person with Olympic pole jumping disorder"?

Names will always be around while language exists in this society, cleft palate children used to be considered slow, left handers used to be considered the devils hand maidens, children used to be seen and not heard, but society changed as it must. I have faith in society that they can also make the evolutionary leap in believing autistic people are valued members of society, just like artists, doctors, computer programmers, left handers, deaf people......................

Sunday, September 14, 2014

People on the spectrum have emotions - News Alert!!!!

Oh my god they are just working this out now? Our kids have tons of empathy they just don't know how to respond to it, they need to learn the socially acceptable way to do that which is a social mine field of danger when they get it wrong.

Sometimes emotion can be so strong I can't look at people and can't talk to them, those cases for me are extremely rare and very short (worst i think was 30 mins in my mid thirties but it helps we with insight about more severe ASD.)

http://seventhvoice.wordpress.com/2013/11/16/new-study-finds-that-individuals-with-aspergers-syndrome-dont-lack-empathy-in-fact-if-anything-they-empathize-too-much/

Oh PS our kids are no aliens, they have higher anxiety levels, and you would too if you could not find the right words to convey your thoughts and feelings and everyone miss understood you.

Wednesday, August 13, 2014

I have made 12 playlists for our specialist children.

Friday, August 01, 2014

These are people with Autism

These are people with Autism -

Carly Fleishmann (going to university this year, still non verbal) http://youtu.be/vNZVV4Ciccg , http://carlysvoice.com/home/aboutcarly/

"I am not able to talk out of my mouth, however I have found another way to communicate by spelling on my computer. (and yes that is me typing on the computer by myself)

I used to think I was the only kid with autism who communicates by spelling but last year I met a group of kids that communicate the same way. In fact some are even faster at typing then I am."

Michael Weinstein (Non verbal) http://www.goldenhatfoundation.org/about-us/blog/125-golden-hat-foundation-blog-70211

"That was when I realized several things. I was not retarded at all, but I was very handicapped by my lack of ability to speak. People assume that if you cannot speak, then you must be retarded. Most people who are trained in special education know nothing about autism, although they think they are the autism experts. "

Dillan Barmache - (Non verbal) http://abc7.com/news/non-verbal-teen-with-autism-gives-grad-speech/96359/

""Always look inside other people's experience in order to gain another perspective," Dillan said on stage. For years, Dillan's ideas used to be trapped inside his head. Today they're spilling out with the aid of his tablet computer."

Jake Willmann (non verbal) - http://youtu.be/q4pU9980Hm0

Autistic child is also math genius"

Rylan Kirksey (non verbal) - At 2 years, adding and spelling

http://www.myfoxatlanta.com/story/25613637/tennessee-boy-with-autism-communicates-with-yard-sale-play-mat

Dashiell (minimally verbal)

http://www.specialneeds.com/children-and-parents/autism/autism-beyond-nonverbal-label

"“I wish people didn’t make fun of me. They don’t see me. They only see my disability. If they only knew I am an intelligent man who is saddened by people who tease me. I hope my story will help others understand that autism is not a disease you might catch but a condition that gives me the ability to see things that others don’t."

Edward Warburton (nonverbal - partially verbal in public depending on stress, getting more verbal at home every day) - At 3 years and 1 month can read, spell and write words, loves planets, numbers and letters. http://youtu.be/sildWUJETlg

Dr Stephen Shore (verbal from 4) - http://youtu.be/VZlApgtt5Fs

"Stephen Shore, doctoral student and individual with autism, discusses his personal history and experiences with ASD. He states how important it is to him to give parents hope. Mr. Shore explains how he feels autism is a difference to be worked with as opposed to as enemy to be defeated."

Dr Temple Grandin (verbal from 4) - http://youtu.be/UKhg68QJlo0

"Temple Grandin, diagnosed with autism as a child, talks about how her mind works -- sharing her ability to "think in pictures," which helps her solve problems that neurotypical brains might miss. She makes the case that the world needs people on the autism "

Jacob Barnett - they can't test his intelligence because he keeps getting ALL of the answers right, started uni at 8 years of age. Not just any subject Quantum Physics.

www.youtube.com/watch?v=g91IQsS2spA

Jacob (Jake) Barnett "Math and Science Prodigy" on 60 Minutes"

Suzanne Warburton (nee Jeffares) Blog

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