When I say my son has a disability - I mean it purely in the Clinical sense and a social one. At an appointment at the hospital I have to hold my son down for the very basic of examination (that breaks my heart). In the mall I have to stop him from running out of my sight because he does not have verbal skills to say "I have lost my mummy" or even yell for me :-( , he is likely to run out in front of cars. We went to a friends birthday party and this reminded me of how ASD my son is...we walked into her living room with all their family and friends and Edward just started screaming and having a full on meltdown. If feeling nervous he can recite the alphabet, count or spin. He is just getting conversation communication at 3 years and 3 months. Edward has pica still. And he is extremely intelligent but it took I think 5 visits before the other ladies at our little class we go to weekly got to see why we were there when Edward at 3 picked up a red felt tip and wrote red with it, picked up the page and said red, then turned the page over and wrote his name. Preconceptions need to change in society for my son and other children on the spectrum to flourish and succeed. In other countries 2e (having an ability and disability) is diagnosed. Here in New Zealand it is ignored, definitely not diagnosed. I may as well be screaming in the mall pink elephants are about to trample you than someone believe (before proof) that Edward is gifted.
I have been told categorically that if I say that my son is gifted to people that supply services to help him with things that need a little help I can forget any help.
But I refuse to tell people that my son is just broken. I don't see Edward as broken. It is not fine sailing but I love my little man to bits and the highs far exceed the lows.
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